What’s in a Name? – Putting Rare Diseases Patients First!

We are really pleased to announce our name change from Rare Diseases Patients First to Putting Rare Diseases Patients First! We will also be known by the abbreviation PRDPF!

As a non profit that seeks to serve the needs of patients with rare diseases we feel that this name better reflects our goals to put you first.

To reflect this name change we now have an exciting new logo.

We hope you will like both of these changes, and continue to follow us. We have a lot of exciting Webinars, speakers, and Blog posts planned.  We are doing all of this so that you can be informed and empowered.

Lorna Speid, Ph.D.


Putting Rare Diseases Patients First!


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